Get Involved
Join the VEXAS community, fundraise, partner with us, or spread awareness. Every action, big or small, can move VEXAS research and awareness forward.
Join the VEXAS community
Stay informed through Foundation updates, and connect with patients, caregivers, and families through the independent VEXAS Support Group on Facebook.
“If I could offer one piece of advice to someone else on this journey, it would be to advocate for yourself.”
Ian · Diagnosed with VEXAS, 2024
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Receive the latest VEXAS treatment updates, research news, clinical trial information, and actions you can take to help fight this disease.
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Independent Facebook Support Group for Warriors, Champions & Families
Private Facebook group · Not run by the Foundation
VEXAS can feel isolating, especially when you're newly diagnosed or trying to find answers. The independent VEXAS Support Facebook Group gives warriors, champions, and family members a private place to share experiences, ask questions, learn from one another, and navigate the VEXAS journey together.
Fundraise for VEXAS
You do not have to be a scientist to advance VEXAS research. Personal fundraising, from birthday campaigns to endurance events, can turn your network and your story into meaningful support for research and patient programs.
Invite friends and family to support the VEXAS Foundation in lieu of gifts or in honor of someone meaningful to you.
Dedicate a race, cycling event, walkathon, workplace event, or community gathering to raising funds and awareness for VEXAS.
Ask your employer about matching gifts, workplace giving, sponsorships, or other opportunities that may multiply your impact.
Partner with the Foundation
The VEXAS Foundation welcomes partnerships with pharmaceutical companies, research institutions, healthcare organizations, and patient advocacy groups who share our mission of improving outcomes for VEXAS patients.
Research partnerships
Collaborate on grant programs, clinical trial support, or investigator-initiated studies. We maintain full scientific independence while welcoming industry investment in VEXAS research.
Education & awareness
Co-develop patient education resources, support physician education programs, or sponsor awareness campaigns that help patients get diagnosed sooner.
Philanthropic support
Corporate giving, grant funding, and sponsorship opportunities are available. All partnerships are disclosed transparently to our community.
Ready to explore a partnership?
Reach out to discuss how we can work together to advance VEXAS research and patient outcomes.
Awareness toolkit
Raising awareness is one of the most powerful ways to make a difference for people living with VEXAS. Because VEXAS is still a newly recognized disease, many healthcare providers have never encountered it, and patients often spend years searching for answers. Whether you are educating a physician, supporting a loved one, advocating for yourself, or simply helping others learn about VEXAS, these resources can spark conversations, increase understanding, and help shorten the path to diagnosis and treatment.