Join the VEXAS community
Stay informed through Foundation updates, and connect with patients, caregivers, and families through the independent VEXAS Support Group on Facebook.
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Receive the latest VEXAS treatment updates, research news, clinical trial information, and actions you can take to help fight this disease.
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VEXAS Support Group
Private Facebook group · Patients, caregivers & families
VEXAS can feel isolating, especially before diagnosis. This active patient community gives people living with VEXAS, caregivers, and families a place to share experiences, ask questions, and navigate the journey together.
Fundraise for VEXAS
You do not have to be a scientist to advance VEXAS research. Personal fundraising, from birthday campaigns to endurance events, can turn your network and your story into meaningful support for research and patient programs.
Invite friends and family to support the VEXAS Foundation in lieu of gifts or in honor of someone meaningful to you.
Dedicate a race, cycling event, walkathon, workplace event, or community gathering to raising funds and awareness for VEXAS.
Ask your employer about matching gifts, workplace giving, sponsorships, or other opportunities that may multiply your impact.
Every dollar matters
VEXAS research is young and underfunded. Your direct gift or fundraiser can help advance research grants and patient programs.
Partner with the Foundation
The VEXAS Foundation welcomes partnerships with pharmaceutical companies, research institutions, healthcare organizations, and patient advocacy groups who share our mission of improving outcomes for VEXAS patients.
Research partnerships
Collaborate on grant programs, clinical trial support, or investigator-initiated studies. We maintain full scientific independence while welcoming industry investment in VEXAS research.
Education & awareness
Co-develop patient education resources, support physician education programs, or sponsor awareness campaigns that help patients get diagnosed sooner.
Philanthropic support
Corporate giving, grant funding, and sponsorship opportunities are available. All partnerships are disclosed transparently to our community in our annual report.
Ready to explore a partnership?
Reach out to discuss how we can work together to advance VEXAS research and patient outcomes.
Awareness toolkit
Raising awareness is one of the most powerful ways to make a difference for people living with VEXAS. Because VEXAS is still a newly recognized disease, many healthcare providers have never encountered it, and patients often spend years searching for answers. Whether you are educating a physician, supporting a loved one, advocating for yourself, or simply helping others learn about VEXAS, these resources can spark conversations, increase understanding, and help shorten the path to diagnosis and treatment.