News & Articles
Newsletters, research highlights, and news coverage — keeping the VEXAS community informed on the latest science and foundation updates.
Disclaimer: The material contained in these articles is provided for general information and educational purposes only. Only your healthcare professional can address concerns and questions you may have about VEXAS syndrome.
No recent NIH news releases have mentioned VEXAS syndrome by name. This list checks automatically every day — check back soon.
Recruiting
A 52-Week Study Evaluating the Efficacy and Safety of Arumakimig (MAS825) in Participants With VEXAS Followed by Open-Label Extension (OLE) Period
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Active, Not Recruiting
A Study to Assess the Effectiveness and Safety of Pacritinib in Patients With VEXAS Syndrome (PAXIS)
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Recruiting
Momelotinib in VEXAS Syndrome
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Completed
DECIPHERING AND TARGETING VEXAS
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Not Yet Recruiting
Clinical Phenotype and Prevalence of VEXAS Syndrome in Internal Medicine
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Recruiting
Pacritinib in Vacuoles, E1 Ubiqutin-activating Enzyme, X-linked, Autoinflammatory, Somatic (VEXAS) Syndrome
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Recruiting
A Phase II Study of Allogeneic Hematopoietic Stem Cell Transplant for Subjects With VEXAS (Vacuoles, E1 Enzyme, X-linked, Autoinflammatory, Somatic) Syndrome
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Recruiting
Autoimmune and Autoinflammatory Genetics Study
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Not Yet Recruiting
A Study Evaluating the Efficacy and Safety of Momelotinib in Participants With Vacuoles, E1-enzyme, X-linked, Autoinflammatory, Somatic (VEXAS) Syndrome
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Recruiting
Multicenter, Interdisciplinary National VEXAS Registry With Accompanying Biomaterial Collection
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Not Yet Recruiting
Clonal Hematopoiesis of Immunological Significance
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Enrolling by Invitation
Molecular and Clinical Analysis of Bone Marrow Failure: A Secondary Research Study
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Recruiting
HRQoL and Financial Toxicity in Patients With VEXAS Syndrome
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Recruiting
AutoInflammatory Disease Alliance Registry (AIDA)
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Newsletters & articles
General articles & media coverage
VEXAS Syndrome — Review (nine studies, Table One)
Holly Carpenter opens up about nasty trolls amid her father's cancer diagnosis
Who should be tested for VEXAS syndrome?
VEXAS syndrome: A review of cutaneous findings and treatments in an emerging autoinflammatory disease
Recently identified inflammatory disease VEXAS syndrome may be more common than thought
A Little-Known Inflammatory Disease Is Hiding in Plain Sight
2026
Orf-Like Ulcerated Digital Nodule as a Cutaneous Manifestation of VEXAS Syndrome.
International journal of dermatology, 2026
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2026
Early-onset VEXAS syndrome mimicking orbital cellulitis and successfully treated with allogeneic hematopoietic stem cell transplantation.
Journal of hematopathology, 2026
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2026
Evaluating the Efficacy of Cytokine-Directed Therapies in the Management of VEXAS Syndrome.
ACR open rheumatology, 2026
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2026
Unique Aspects of Allogeneic Hematopoietic Stem Cell Transplantation in VEXAS Syndrome: One Size Does Not Fit All.
American journal of hematology, 2026
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2026
Assessing the Frequency of VEXAS-Related Canonical UBA1 Mutations in Myelodysplastic Syndrome Patients.
European journal of haematology, 2026
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2026
Peripheral blood UBA1 variant burden predicts poor outcomes in VEXAS syndrome: a nationwide prospective study.
Annals of the rheumatic diseases, 2026
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2026
VEXAS Syndrome Associated With a Non-Canonical UBA1 p.Ala478Ser Variant: Diagnostic and Clinical Implications.
International journal of laboratory hematology, 2026
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2026
Endotheliopathy and VWF-ADAMTS13 axis dysfunction in VEXAS thrombogenicity.
Blood, 2026
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2026
UBA1 as a proteostasis-innate immunity checkpoint: lessons from vexas syndrome and therapeutic implications.
Frontiers in immunology, 2026
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2026
Myelodysplasia in VEXAS syndrome.
Blood advances, 2026
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2026
Human Monocytic Models Reveal Genotype-Dependent Inflammatory Programs in VEXAS Syndrome.
Arthritis & rheumatology (Hoboken, N.J.), 2026
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2026
Diagnostic and Therapeutic Challenge: VEXAS Syndrome with Multisystem Inflammation and Myelodysplasia: A Case Report.
Mediterranean journal of rheumatology, 2026
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2026
Acute Fulminant Systemic Granulocytic Vasculitis Involving Arteries and Veins in Vacuoles, E1 Enzyme, X-Linked, Autoinflammatory, Somatic (VEXAS) Syndrome: An Autopsy Case Report.
Pathology international, 2026
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2026
Retraction notice to "Rapid cutaneous remission response to tofacitinib and systemic corticosteroids in VEXAS syndrome with a novel UBA1 mutation" [JAAD Case Reports 68 (2026) 105-107].
JAAD case reports, 2026
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2026
Dual somatic UBA1 Met41 variants with distinct allele frequencies in VEXAS syndrome.
EULAR rheumatology open, 2026
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2026
Dysfunctional UBA1-mutated myeloid cells promote inflammation in VEXAS syndrome.
Nature reviews. Rheumatology, 2026
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2026
Therapeutic Outcomes in VEXAS Syndrome: A Multicenter Comparative Cohort of Allogeneic Hematopoietic Stem Cell Transplantation and Hypomethylating Agents.
American journal of hematology, 2026
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2026
VEXAS Syndrome: Clues to Avoid Vexation.
Journal of cutaneous pathology, 2026
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2026
VEXAS Syndrome：Report of One Case.
Zhongguo yi xue ke xue yuan xue bao. Acta Academiae Medicinae Sinicae, 2026
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2026
Vexas Syndrome: A Multisystem Challenge with Sweet Syndrome and Myelodysplastic Syndrome.
European journal of case reports in internal medicine, 2026
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2026
Sweet syndrome, macrocytic anaemia, and elevated IgE in VEXAS syndrome: a series of three cases from Taiwan.
Pathology, 2026
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2026
Hypomethylating Therapy in VEXAS Syndrome: Disease Modification Beyond Bridging to Transplant.
American journal of hematology, 2026
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2026
Unmasking Macrophage Activation Syndrome in Vexas Syndrome: A Diagnostic Challenge.
European journal of case reports in internal medicine, 2026
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2026
An Italian cartography of VEXAS-related thrombosis.
HemaSphere, 2026
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2026
VEXAS Syndrome: A Comprehensive Review for Dermatologists Part 1: Epidemiology, Pathophysiology, and Clinical Presentations.
Journal of the American Academy of Dermatology, 2026
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2026
VEXAS Syndrome: A Comprehensive Review for Dermatologists Part 2: Work-up, Diagnosis, Treatment, and Prognosis.
Journal of the American Academy of Dermatology, 2026
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2026
VEXAS Syndrome with Vibrio vulnificus Sepsis during Treatment with Tocilizumab.
Internal medicine (Tokyo, Japan), 2026
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