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Share Your Story

VEXAS is rare, and for most people the hardest part is feeling alone with it. Your experience — as a warrior, a champion, or a family member — helps someone else recognize what they are going through and find their way to answers sooner.

Tell us your story

Take as much space as you need — there is no right way to write this. Nothing is published until you have seen and approved the final version.

Full legal name
Submitting about someone else?
Is the person in the story under 18?
"Ron" or "Ron M." or "The Smith family"
How to credit you
I am a…
300–800 words is typical.
Drag & Drop Files, Choose Files to Upload
Confirm you have the right to share this photo
Permissions
Before you start
A few details about you, and how you would like to be credited
Your story in your own words — most run 300–800 words
A photo, if you would like one included (optional)
Your permission for how we may share it
What happens next
A person reads every submission — this is not an automated queue.
We may edit lightly for length and clarity, and we will always send you the final version for approval before anything appears.
Not every story is published right away. We will let you know either way.
You stay in control
Be credited by first name, initials, or stay completely anonymous — your choice on the form.
Your contact details are never published — they are only how we reach you.
Change your mind at any time. Email info@vexas.org and we will take your story down.
Not sure where to begin?
Reading someone else's can help. Ian wrote about seven years of floating pains and dead ends before a diagnosis finally came.
Read Ian's story →
Your story describes your health, and sharing it here makes it public. We handle submissions according to our Privacy Policy.
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