Support & Resources

Support &

It’s important to find healthcare professionals who understand VEXAS syndrome and are up-to-date on the latest treatment plans. However, most of the medical community is not aware of VEXAS syndrome and many other rare inflammatory disorders. To help patients find the right care, we’ve provided a list of medical centers that have experience treating VEXAS patients.

Clinics that support VEXAS syndrome

Cleveland Clinic
National Institute of Health
Mayo Clinic
NYU Langone Health


There are many non-profit organizations that offer financial aid to individuals who suffer from chronic, life-threatening, or debilitating illnesses. Financial assistance may be provided based on need or specific treatment criteria. Here is a partial list of Co-Pay and Financial Assistance programs available.

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